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I shake all the time. It’s exhausting and causes chronic pain in my joints and muscles. It is also the only life I have ever known. I use yoga, dance, nutrition, and breathing to help manage my symptoms.

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Maysoon Zayid

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Today, I am a touring standup comic who cannot stand up. Within three minutes, I begin to wilt, lose my balance, and topple over. I can tap dance and run in heels, but I need to use a wheelchair to navigate airports.

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I’ve been making notes of my life, but when it finally came time to write it, it took me back, and I cried many tears. But I also think that it’s liberating.

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May 14, 2024

I’ve been making notes of my life, but when it finally came time to write it, it took me back, and I cried many tears. But I also think that it’s liberating.

Previous

May 14, 2024

Today, I am a touring standup comic who cannot stand up. Within three minutes, I begin to wilt, lose my balance, and topple over. I can tap dance and run in heels, but I need to use a wheelchair to navigate airports.

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