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Mattie Stepanek

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Every year, once a year, in Maryland, I go for a week and overnight camp with about 50 to 60 kids with muscular dystrophy, all ages, seven to 21. And it is really fun. I have some great friends there and wonderful counselors.

Mattie Stepanek

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Mattie Stepanek

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The doctor said, ‘He can’t last a week.’ And I did. And they said, ‘There’s no way this kid’s going to last a month.’ And I did. And so they said, ‘Two years. He’s not going to make it.’ Two years. ‘Five years. He can’t do that.’ I lived to be five years. ‘He’s never going to hit double digits.’ And here I am, a new teenager.

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Maybe I wanted to have kids because you want to leave behind lessons, leave behind everything that matters to you. That’s how you touch the world. But I have to reconsider what it’s like to leave a legacy.

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May 14, 2024

Maybe I wanted to have kids because you want to leave behind lessons, leave behind everything that matters to you. That’s how you touch the world. But I have to reconsider what it’s like to leave a legacy.

Previous

May 14, 2024

The doctor said, ‘He can’t last a week.’ And I did. And they said, ‘There’s no way this kid’s going to last a month.’ And I did. And so they said, ‘Two years. He’s not going to make it.’ Two years. ‘Five years. He can’t do that.’ I lived to be five years. ‘He’s never going to hit double digits.’ And here I am, a new teenager.

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